Yes, once again I had a procedure that told me absolutely nothing about what is going on with me. I suppose I should be happy that this process of elimination is helping me to find the real problem, but this morning when doctor’s office called they pretty much said that after the nerve conduction testing next month, there is nothing more they have to offer. Great. Now I have another month and a half of falling down before going through more testing that will most likely have “inconclusive” results.
Coincidentally the night before the test I watched a bad movie where a running joke was one of the characters trying to break into the recording industry by composing House Music. The music was truly awful but was considered greatly improved when a nearly-dead man in his apartment started tapping a single note over and over on the composer’s keyboard. It turns out that MRI’s sound just like that awful House Music! It was all I could do to keep from laughing as that single repeating note kept being blasted through the tube to the counterpoint of musical sounds the machine made. (If you haven’t had an MRI, they are very musical. They don’t just make the ka-chunk, ka-chunk sound shown in TV medical dramas.)
I have a friend who has been very supportive and keeps encouraging me saying that it’s not that nothing is wrong with me but that the doctors haven’t found anything because they aren’t asking the right questions. In the meantime, my technical diagnosis still remains “bull sh*t lying hypochondriac bit*h”.
Oh my gosh, would you quit yammering about yourself already and tell a story about me?!?
Next time, puppy.
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You have all my sympathy. My husband went through any number of examinations which found supposedly nothing….then he was lucky enough to fall on a Soutg African doctor practising inLondon who told him what he had in a jiffy by watching him walk.
Seriously? If you don’t mind me asking, what did the doctor find? I hope your husband was finally able to get help for his condition. ❤️
Sure. He had had all sorts of diagnoses, and a time in the national hospital for neurological diseases with no conclusions, then heard of a specialist working privately in Harley Street who had come in from South Africa. The chap asked him to walk across the room and from that alone diagnosed him as having Miller Fisher…a variant of Guillain-Barre syndrome. With G-B you have one attack only and you recover or die, with M-F you have recurrent attacks with the same outcomes. At that time two treatment protocols were available…plasmapheresis or cortisone. Unfortunately they tried cortisone – as being less intrusive – and it sent him into a coma. Recovery was slow. After that he had plasmapheresis every few months, which did not altogether do away with attacks, but made them less dangerous. Later the diagnosis was changed to CANOMAD – another manifestation of G-B, linked to the production of over large red blood corpuscles.
It is thought his condition was linked to multiple vaccinations when travelling in Africa, and the result is that to avoid an attack he must have no vaccinations of any sort, and to isolate whenever a ‘flu is in the area as that will inevitably start off an attack. Luckily the health service here is tops….he feels an attack coming on, goes to the local hospital who send him to the major hospital in an ambulance where the ward is set up for treatment. Five cycles of plasma over five days and he is fit to return home.
I think it all comes down to dropping on the right doctor….but how the blazes you are supposed to know which one is any good is beyond me.
Oh my goodness, what a nightmare that must have been. I’m glad your husband finally found someone to help him. ❤️
If you are not going to a lady doctor, find one fast. Male doctors don’t believe women.
This one is a lady doctor. Mom is finding that very few people – doctors or lay – listen when you talk. They automatically assume they already know what you’re talking about. ☹️
I feel ya.
I am so sorry that you do!
I’ll be having an MRI on Monday – should I bring earbuds and try to listen to a book? I don’t think my doctor and PT are listening to me either, and I’m seriously tired of being in pain. Wanna go whine together over a few adult beverages? I’d offer to pick you up if you fall down but my back is effed up. 🙂
Ooh yes, whining over adult beverages sounds like my kind of weekend! I know everyone is in a hurry these days, but taking a few moments to listen to us would save everyone a ton of work/tests/money. I hope you can get some relief from your pain soon. Have you tried CBD oil? Did it help?
At the MRI, they provided headphones. You could choose to listen to music. I decided just to listen to what was going on. (It was entertaining to me!). If you have the test early enough in the day, you might get your results back before close of business.
My test is at 12:45. I’ve been using Votaren gel and that helps but apparently my sciatic nerve is really, really pissed off at me. I’m having an injection of something or other on Thursday, the MRI is to make sure they stick the needle in the right place, I guess. 🙂 My doctor is usually reallly good about listening, it’s more the PT who isn’t. I shall soon rectify that, though, I’m about at the end of my patience. And I hope you get some answers soon!
There is the problem. Your physical therapist is on your last nerve, and it happens to be the sciatic! 😆. (Seriously, I hope you feel better after Monday.)
Been thinking about you. How did Monday go?
It wasn’t nearly as bad as I expected. Injection tomorrow and I hope it helps!
Hooray! Praying for some relief for you.
And for you!
I KNOW YOUR FRUSTRATION… WALKED THAT ROAD
JUST TO MAKE YOU SMILE !!!
THE HYPOCHONDRIACS GRAVE STONE………….
” SEE I TOLD YOU I WAS SICK ” !!!!!!!!!!!!!!!!
Perfect! I love it!
So sorry to know you’ve had to go through this too. *hugs*
I’m so sorry to hear about this…I know it’s so frustrating. 😦
Much ❤️ and gentle-(((HUGS))) Will keep you in our thoughts and bestest wishes for some answers and healing. ❤️
I know you were hoping that you would have a diagnosis. I keep hoping you’ll find a doctor who will be able to diagnosis you.
Thank you. I am so frustrated it’s not even funny.
I know the feeling. I’ve had a couple of medical issues that took a couple of years to figure out. Best of luck. If you were in Denver area, I would recommend my neurologist.
Hmm, does he/she do telemedicine? 🤔
He did during 2020. I don’t know if he still does. Here’s his info https://www.centura.org/provider-search/joshua-renkin-md
Oh, thank you! If the doctor I see next is a disappointment, I’ll look into this doctor!
Hopefully, you won’t need it!